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Thread: Eva Markvoort: blogged about her CF struggle

  1. #1
    Join Date
    Oct 2007
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    Eva Markvoort: blogged about her CF struggle

    I just found this looking for something else.

    The new trend of young dying persons chronicling their terminal illnesses online, prominent example, former aspiring Canadian actress Eva Markvoort, who died at age 25 this past March of cystic fibrosis after her body rejected one double lung transplant, and awaited another.

    She maintained a blog, http://65redroses.livejournal.com/

    She the subject of the documentary "65 Red Roses" (her childhood mispronunciation of her disease), which had ended on the hopeful note of the lung transplant that later ironically ended up hastening her death. It is heartbreaking to see pictures of her looking and feeling so much better at the film's premiere, knowing now that it was only to be a brief rally.

    Eva also had posted numerous videos posted on Youtube.
    This is her final farewell video, recorded about 6 weeks before she passed away:
    http://www.youtube.com/watch?v=GjinOU7LR0k
    Sad sad sad sad sad.

    The "65 Roses" video was shown several times on Polish television, which made her something of a celebrity in Poland, and she was even interviewed by a Polish TV crew when they were there for the Vancouver Olympics.

    One could argue she was exploiting herself and her family's pain but what of it? She's still dead, dead too soon like many other young people with terminal ailments, after suffering terribly, neither of which of course should have to happen to anyone.

    Indeed, some are now comparing Eva's courage in the face of her fate to fellow Canadian, the late Terry Fox.

    She raised awareness and funds too, though I don't know, they keep throwing money at these foundations and I wonder if there will ever be a "cure" or "prevention"--- Maybe inventing treatments that make these fatal conditions into chronic but survivable situations is the best to hope for?

    More articles:

    http://www.cnn.com/2010/HEALTH/04/27...ess/index.html

    http://www.vancouversun.com/health/M...741/story.html

    http://en.wikipedia.org/wiki/Eva_Markvoort
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  2. #2
    screaming_mimi Guest
    My first boyfriend passed away from CF a couple of weeks past his 18th birthday, it'a terrible way to go (not that any other way is a piece of cake), I mean to struggle for each breath (he had to lay on an incline board and literally have the mucus beaten out of his lungs three times a day, take 60 pills a day to help his body absorb nutrients from food so he wouldn't starve and sleep in an oxygen tent all of his short life) and then to die so damn young...God Bless them all and may they rest in peace...

  3. #3
    trishsixxm Guest
    This diease always reminds me of that story Alex the life of a Child. I cried my eyes out during this moving it was truely heartbreaking. But that's where I picked my saying for my dad. My daddy my little daddy. I'm tearing up just thinking about it.

  4. #4
    Join Date
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    I spent hours going through her blog and I'm in tears. How unfair this world is.... Does anyone know when she started rejecting her lung? I can't seem to find out.
    [SIGPIC][/SIGPIC]

    "I will be buried in a spring loaded casket filled with confetti, and a future archaeologist will have one awesome day at work."

  5. #5
    Join Date
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    My coworker's baby wasn't even a month old when diagnosed with CF. I'm not sure if I should share this with him or not.
    Performing my signature monkey hump move since 10/16/2007...

    RIP Dad- 11/14/1947 to 12/16/2013

  6. #6
    Quote Originally Posted by Miho View Post
    I spent hours going through her blog and I'm in tears. How unfair this world is.... Does anyone know when she started rejecting her lung? I can't seem to find out.
    I kinda found two of her blogs talking about it.
    One is:
    http://65redroses.livejournal.com/102203.html
    the other is (with a video that is sad):
    http://65redroses.livejournal.com/103227.html

  7. #7
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    Quote Originally Posted by DietCokeofEvil View Post
    My coworker's baby wasn't even a month old when diagnosed with CF. I'm not sure if I should share this with him or not.

    I wouldn't.. life expectancy isn't great and it is riddled with pain....
    [SIGPIC][/SIGPIC]

    "I will be buried in a spring loaded casket filled with confetti, and a future archaeologist will have one awesome day at work."

  8. #8
    Join Date
    Apr 2010
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    Texas
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    The link to her blog was in a story on my homepage one day shortly after she died. I read a lot of it then. She was such a pretty girl and seemed real sweet.

  9. #9
    trishsixxm Guest
    That you tube video was hard to watch. I can watch alot of things but seeing her dad in tears was just too much. No parent should have to bury their child. RIP Eva.

  10. #10
    Join Date
    Jun 2010
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    Los Angeles
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    37
    cried so hard the first time i read through her lj =/

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